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High-stakes Advocacy Events
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African albinism groups supported
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Activities implementing the African Union Plan of Action
Impact of our Human Rights Advocacy
100%Albinism groups are interested in continuing to collaborate with AAN to engage AU and UN human rights mechanisms through joint human rights reporting. |
Notable direct impacts of human rights advocacy, according to our survey of albinism groups:
- A decrease in human rights violations of persons with albinism including fewer reported incidences of discrimination.
- Recognition and collaboration with government institutions such as National Human Rights Institutions (NHRIs) and government ministries.
- Improved reasonable accommodation for low vision in the education system of children with albinism.
- Elevation of issues related to people with albinism to high-level platforms including governmental and intergovernmental bodies.
- Mainstreaming of albinism issues in the disability rights space.
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Testimonial
“I was the Chairperson of the South Africa National Albinism Task Force for over two years, and most of my leadership tasks were informed by the different human rights instruments and tools from the African Union and United Nations shared by AAN”
Mpho Tjope, Albinism Advocacy for Access – South Africa
Impact of AAN’s Capacity Development
Notable direct impacts of our capacity developmnt of people with albinism according to our survey of albinism groups:
- Improved Advocacy with Government: A participant from our Learning Forum from the Democratic Republic of Congo submitted the Learning Forum report to government officials, sparking government commitment to fund their albinism organization’s proposal. Their advocacy, inspired by the Regional Learning Forum, also played a pivotal role in advancing the adoption of the DRC Disability Law in February 2024.
- Strengthened collaboration: Our Learning Forum participants from Mali strengthened partnership with a dermatology hospital in their country. Together, they distributed hospital-supplied sunscreen nationwide.
- National Action Plan on Albinism: Developed: Participants from Angola, including government representatives, were so inspired by their learning at the AAN Forum in 2023, that they returned home to accelerate the drafting and adoption of their National Action Plan on albinism.
- Empowered Persons with Albinism: A participant from Zambia at AAN’s forum, reported that AAN’s capacity development activities both regionally and in Zambia, had led to an increase in visibility of the human rights situation of persons with albinism from both corporate and governmental entities in Zambia.
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Testimonial
“We have high hopes for AAN to truly support the implementation of the AU Plan of Action 2021-2031 because at present, no other structure or personality has the power, tactics and network that AAN has. Without convenings such as the Regional Learning Forum, African Governments and the AU may not be active in implementing the AU Action Plan on Albinism.”
Souradji Ouro-Yondo, Association Nationale des Personnes Atteintes d’Albinisme au Togo (ANAT)
Impact of AAN’s Collaborations & Partnerships
50%Increase in the number of National Action Plans adopted or on their way to being adopted in Kenya, Malawi, Mozambique, Tanzania, and Uganda with AAN’s support since 2021. |
Notable direct impacts of our Collaborations & Partnerships according to our survey of albinism groups:
- NAP adoption and launch: AAN supported albinism groups and their collaborators in Uganda to develop its National Action Plan on Albinism (NAP), leading to its successful adoption by the government on International Albinism Awareness Day on June 13th, 2022. The NAP has given implementing partners – government and international donors/funding partners the confidence to allocate resources in support of persons with albinism in the country.
- Visibility on Albinism through Multi-Stakeholder Engagements: We have worked with experts such as the UN Independent Expert on Albinism to promote NAP adoption in Tanzania, Kenya, South Africa, Namibia among others. AAN has facilitated the collaborative drafting and adoption of NAPs in these countries through technical and facilitative support.
Testimonials
“We acknowledge the African Albinism Network for their invaluable methodological support in advocacy, as well as their technical assistance based on human rights-based approach in order to enrich Angola’s National Action Plan content.”
Joel Tchombasi, Associação Fraternidade Albinista, Angola
“The NAP has been instrumental in creating a platform for awareness, as we have been able to discourage myths and misconceptions that were there. If we compare the years before, when the NAP was not active, with when it was adopted, the number of attacks has reduced; it has been an instrument in tackling the attacks against persons with albinism.”
Young Muhamba, Association of Persons with Albinism in Malawi